National Institutes of Health (NIH)
- Understanding Clinical Trials – Answers the frequently asked questions about clinical trials, who can participate, benefits and risks, types of clinical trials and phases and explains key terms.
NIH & Clinical Research
- Clinical Research because lives depend on it - Explains how clinical research works, who can participate, how to learn more, and where to find clinical trials.
National Institute of Aging (NIA) and Alzheimer’s Disease Education And Referral Center (ADEAR)
- Participating in Alzheimer’s Disease Clinical Trials and Studies Fact Sheet – Describes Alzheimer’s disease clinical studies and steps in the process.
- Clinical Trials and Older People - Describes what clinical trials are and why you might want to participate, benefits and risks and questions to ask.
- Alzheimer’s Disease: Unraveling the Mystery - Part 3 of this document covers the different types and phases of clinical trials, how to learn more about research opportunities and questions to consider before participating.
National Institute of Mental Health
- A Participant’s Guide to Mental Clinical Research - Explores information about volunteering in clinical trials. It provides an excellent overview and is not specific to mental health.
- MedlinePlus – This database searches authoritative information from NLM, NIH, other government agencies and health-related organizations to help answer health questions.
Food and Drug Administration
- Participating in Clinical Trials - Clinical trials are voluntary research studies, conducted in people, that are designed to answer specific questions about the safety and/or effectiveness of drugs, vaccines, other therapies, or new ways of using existing treatments.
- Clinical Trials of Medical Treatments: Why Volunteer? – Describes clinical trials, reasons to participate, questions to ask and where to get more information.
Project IMPACT (Increase Minority Participation and Awareness of Clinical Trials)
- Patients/Consumers’ Information on Clinical Trials – Information from the National Medical Association to promote greater participation of African Americans in clinical trials. Discusses types of clinical trials, informed consent, questions to ask, and why participation by minorities is important.
The Center for Information & Study on Clinical Research Participation (CISCRP)
- Becoming Educated About Clinical Trials – Clear, easy-to-understand information about the clinical research process and its importance to public health. Sections include: Questions to Ask, Frequently Asked Questions, Facts & Figures, Informational Videos, Patient Perspectives, etc.
- *Education Before Participation – A more concise version about the nature of clinical trials, questions to ask, participant rights, and benefits and risks.
- *African Americans and Clinical Research - Explains clinical research, the importance of having African Americans participate, volunteer safeguards, and questions to ask.
- Clinical Studies - The Alzheimer’s Association is a voluntary health organization in Alzheimer’s care, support and research. The Clinical Studies section of their webpage describes reasons to consider participating in a clinical trial, the various phases of clinical trials, informed consent, and how to find a study.
- Overview of Clinical Trials - CenterWatch, a Boston-based publisher of medical information, provides an overview of clinical trials and more detailed explanation of the various phases of human clinical trials.
Society for Women’s Health Research
- Inclusion of Women in Medical Research - Explores the importance of having women involved in research clinical studies.
U.S. Department of Health and Human Services, Office of Human Research Protections
- *Becoming a Research Volunteer : It's Your Decision (PDF) – This 2-page brochure reviews information about clinical trials, why research is important, points to remember and questions to ask about the research volunteer process.
* PDF documents require Adobe Reader™ which can be downloaded for free here.
This pathfinder was supported by a Carnegie-Whitney Grant awarded by the American Library Association to the Shimberg Health Sciences Library, University of South Florida in Tampa, Florida.
Created by Allison M. Howard, MLIS, AHIP with assistance from John Orriola, MA, M.Ed, AHIP for the Spanish translations.